Saturday, November 10, 2007

friends and support group

the problem with not being able to find what you want, or feel like you need, is that you start to think maybe you shouldn't have it. maybe it's wrong to want something, if the world seems designed to keep you from having it, if people you meet act like it's not something healthy.

it's not that the people who actually know me say this. my friends, my therapist: they all say the things i want are perfectly reasonable.

what am i talking about? i, ellis, want to have friends my own age. mandy wants this. jamie wants this. teller wants this. probably the others do too.

i, and lots of the adults in the system, want a really good support group, where we can talk with other people with DID/dissociative disorders about practical, day-to-day coping skills. where we can learn how to manage communication, learn tips for negotiating each of our needs, figure out how to cope.

on friends: we accept that it's totally creepy for someone in an adult body to be hanging out with kids our own ages, so that's not really an option. the ideal thing would be to know other people who are multiple, and be able to have time hanging out with them as friends, so that the younger parts can spend time with people their own ages. finding other multiples is part of why i wanted to go to a support group.


so why am i thinking about this today?

i went to my DID support group, and once again, it was really frustrating and annoying.

i understand that the guidelines they have are meant to make people safe. the problem is, the guidelines do more, in my mind, to keep people from being able to connect with each other, which i guess is a kind of safety, in the way that locking yourself into a cave millions of miles away from everyone else is a kind of safety.

the guidelines that i have a problem with are the ones that say you're not allowed to comment on what others say, and that you're not allowed to offer advice (which implies you're not allowed to ask for advice). they're very explicit about how you're not required to speak, or to answer questions... this is good, except it comes across in a way that makes me feel like it's not okay to *ask* personal questions, or to have any level of contact outside of the group.

and then there's the fact that people come from all kinds of different perspectives. and several of the people, particularly one who often leads off the talking, really are more focused on their "parts" being separate from them. as though *they* are real, but their parts are just these fragments they (the "real person") have to "absorb" so they can be whole.

this means i wind up feeling really uncomfortable bringing my own experience, of being a bunch of different people sharing a body, into discussion. like i'm deluded, or not focused on the "right" method of healing, or something like that.

the one thing that all of the parts in my body agree on is that there IS no single right way to do things. yeah, even the ones who are bossy know-it-alls can accept that. we all recognize that just because something works for one person doesn't mean it works for everyone. kinda like religion--even the christian ones inside here don't think it's the only way to live. they think there are all kinds of ways to approach the divine, and christianity is only one path (i'm hearing a great deal of shrieking from my childhood church services about how clearly this is evidence that i'm listening to the devil or something. i don't care. even michelle, who is probably the most goody-two-shoes, following all the rules, among us... even she sees there isn't just one path!)

and i think lots of people see therapy or healing from abuse the way other people see religion. as though, if something works for one person, then everyone else has to do things exactly their way, or else they're not doing it right. sinning against the therapy gods or something.

i am lucky that my therapist isn't like that, and my friends aren't like that. but it's still hard when it feels like the rest of the world thinks we're wrong.

like, in trying to find friends. there's a lot of stuff out there, kinda the therapy doctrine for DID, that says parts SHOULDN'T have friends of their own. that multiples SHOULDN'T get together for play-dates. they say it's dangerous. they say it's going to stop us from healing. they say that if parts feel something, that just means the host (the "real person") is denying their feelings, and that if the host ("real person") gets *their* needs met, then the parts will be satisfied.

i think that is a load of hooey. i don't think i, or any of the adults, have a frustrated desire to be lady garbagemen. i think mandy is a little kid who likes the idea of hanging off the back of a truck. i don't think the adult parts are just denying that they enjoy candy corn. i think they genuinely don't like eating it.


but the therapeutic doctrine implies that there's this slippery slope. that if you start acting like parts are real, then
you're going to do all kinds of stupid things. i may rant further about this article at some other point. i just haven't gotten around to it yet.

so the point is, i end up feeling like maybe i shouldn't want the things i want--friends, support. i feel like there's something wrong with me, that i want to hang out with people who AREN'T inside my body (and, let's face it... the other teenage parts are more like siblings than anything else. would YOU want to spend all of your time hanging out with your siblings? when the only thing that connects you is living in the same house--or body, as the case may be.)

yeah. so i'm feeling discouraged, and also a little angry.

5 comments:

Patches said...

we can really relate to this post on many levels.

Members here too want friends their age.

We disagree strongly with lots of what the 'accepted' method for 'healing' DID is. We really think that those guidelines are made up by people who have no idea because they aren't multiple. They see us as not real, when we know that is untrue.

I know my words likely don't help, but know that you are heard and we agree with you.

Secret Oompaa said...

i can relate to what you are saying about the different beliefs. i think people with DID seem more open to other alternatives in some cases or other paths because there are others inside that have their own paths and ways of doing things. it seems we really have to be more open minded if we are going to or are willing to accept everyone inside. i don't think there is one 'accepted method of healing'. it's a shame that there are people out there that do think that in my opinion. like pdocs and such. just my thoughts. you have an awesome blog with

Rising Rainbow said...

My system doesn't work like that. I'm pretty sure that the different systems and how they work are as different as the situations and people who created them. What that means to me is that we have all different needs and different things work for us. I think professionals who try to push us all into the same pigdeon hole are reallly not helpful at all.

If there's one thing I've learned about science over the years, it always believes it's right when sometimes it is terribly wrong.

Many professionals are still not even convinced that DID or MPD is real let alone know what "really" works to heal us. I would be leery of anyone who considered themselves to be an "expert" on multiples.

The people I have met who were the most "expert" were the ones convinced of how little they knew. That gave them the ability to be open to the path of the multiple.

I'm afraid your group doesn't sound like much support to me.

Jigsaw Analogy said...

thanks for the responses. this is actually jamie, and not ellis, but we're both feeling the same way. having a hard time right now, and feeling pretty discouraged, but it's really helpful to see that i'm not the only one who feels like this.

the support group has its positive side. there are a couple of people who i'd really like to spend more time with, except it feels like breaking the rules to ask them for contact outside the group. but it's nice to see them once a month, and to feel like i'm not TOTALLY alone.

maybe if i ever stop feeling so bad, i can start working on figuring out ways for people who don't agree with the fundamentalist therapy doctrine to get things like a play space or ways of feeling less alone in real life.

Medicoglia, RN said...

We agree with what RR said about the most expert people (t's) on DID are the ones that know (and admit) that they know little about it!

The friend our own age thing is real hard. We do have friends our own age in another body, and we are very happy about that but we don't get to see them very often. We only see them like two or three times a year and only for like a couple days when we do. We would like to see them lots more but there is so much stuff that their big ones and our big ones have to do that it just doesn't work out. Even though we know they are there, it is real hard to not feel like we don't have friends sometimes.

Rachel